The National Foundation for Ectodermal Dysplasias has led the fight for the past seven years to ensure individuals born with congenital anomalies receive the medically necessary treatments they need and deserve. The Ensuring Lasting Smiles Act (ELSA) was introduced to the U.S. Congress in 2018, and through persistent advocacy alongside our broad coalition of 70+ patient and professional organizations, we have successfully moved this common-sense legislation through the U.S. House of Representatives, where it was passed on April 4, 2022.
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Why Your Support is Critical to ELSA’s Success
The NFED has spent considerable resources to ensure all ELSA advocates have the support and resources needed to be successful in their advocacy efforts. Our number one advocacy initiative remains the passage of the Ensuring Lasting Smiles Act. We will continue to make ELSA a priority and work tirelessly to ensure it is passed in the 118th Congress. We don’t want to lose our momentum! However, we need your support to make this happen.
In order to keep ELSA moving forward it is going to take further resources in terms of staff time, technology, marketing/communications and funding. Our strategy includes the grass-roots efforts of families, advocates, and providers reaching out to their legislators, and this all requires NFED staff support to coordinate this work. We also plan to sponsor Advocacy Day on Capitol Hill events in 2023 (with one tentatively being planned to occur in-person in Washington, D.C.) and invite ELSA supporting organizations and sponsors to join.
ELSA Needs You. Our Families Need You.
As a mother of an affected child, it brings me to tears to hear from families struggling to receive life-changing treatments, and all I can say to them is that we are doing everything in our power to get ELSA passed. But we can’t do it alone.
We are humbly asking for your support to lead Team ELSA to victory and have included the sponsor levels below. Sponsor organizations and families will be featured as sponsors on our ELSA Supporters webpage and throughout the year on related communications and social media posts.
Thank You for Your Consideration,
Becky Abbott, MPH
Director, Treatment and Research Advocacy
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Please contact me at firstname.lastname@example.org if you have any questions or would like more information about sponsorships.