Don’t Forget To Take Care of Yourself

There are many emotions that we are all experiencing throughout these days of uncertainty. It’s highly likely that each of us will travel through the stages of grief. Some days, the stress can feel so heavy. It’s important to recognize and accept that this is OKAY! While our situations and personal experiences may be different, we’re all learning how to accept and cope with the changes in our lives as a result of COVID-19

Using M&Ms to Teach About Ectodermal Dysplasia

The following presentation is a very simple way to introduce the ectodermal dysplasia to your child’s classmates and teachers. We published this article years ago but it’s still a great idea for parents to use in their child’s classroom. Levi is now an adult who has his own family! By Kim Howard My son’s name…

Ectodermal Dysplasia Conferences: Getting to Know Other Families Like Yours

The world can be a pretty lonely place if you think that yours is the only family navigating the twists and turns of life with ectodermal dysplasia. But there’s no need to live on an island! There are plenty of ways to start making connections and building a network of love and support, including attending ectodermal dysplasia conferences.